We want to work with an individual with the right skills to support us to achieve our aims in a way which gives them the opportunity to shape the project. We are keen to hear from individuals who will relish the challenge.
What is the Northern Children’s Hospice Collaborative?
This informal collaborative of Northern Children’s Hospices is made up of:
- Andy’s – part of St Andrew’s in Grimsby
- Bluebell Wood – Sheffield
- Brian House – Blackpool
- Butterwick – Stockton-on-Tees
- Claire House – Merseyside
- Derian House – Chorley
- Forget-Me-Not – Huddersfield
- Francis House – Manchester
- Jigsaw Cumbria’s Children’s Hospice – Carlisle
- St Oswald’s – Newcastle
What is the Data Project?
The Collaborative has secured funding from The Albert Hunt Trust for a time limited data alignment and improvement project to support the hospices to be clearer about their activity and impact.
This is a strategic piece of work across a significant footprint (from Grimsby to Newcastle and Carlisle to Liverpool) and requires an approach that involves:
- Some practical data skills to support organisations to move towards a single recording, reporting and presentation of key data.
- Understanding of the strategic ambition and support the Collaborative to ensure we can show both the numbers and the ‘so what’.
- The skills to help develop and strengthen relationships.
The project will be hosted by St Oswald’s Hospice in Newcastle with an expectation that the role could be fully remote or based at any of the hospices. Travel to all sites from time to time is essential.
An awareness of issues impacting on equity of access and health inequalities is essential and understanding of the complexity of describing activity within the children’s hospice sector.
What will it entail?
- Review the range of data that is collected across the hospices.
- Review and learn from other areas where similar alignment work has been undertaken to ensure we learn from other areas.
- Develop an approach where the data and language is aligned and comparable to provide a clearer picture across a larger footprint (all our ‘apples’ are ‘apples’)
- Develop a cohesive approach to align data which will help commissioners to better understand the needs of our cohort of children and the impact of children’s hospices
- Develop a way of sharing quantitative and qualitative data understanding the challenges and complexities and existing systems for sharing information
- Accurately describing the gap between capacity and activity
- Support the strengthening of collaboration across hospices across the north of England
- Provide a strong foundation to develop further research opportunities to within the children’s hospice collaborative to adapt to the changing health and care landscape
Planned Outcome – In 18 months’ time we want a clearer picture of the activity in children’s hospices across this northern footprint (not the whole patch) and the impact that has for our NHS and wider health and care services. We want certainty that we are describing the same things in the same way and to avoid extrapolations which may undermine our argument for sustainable support.
Ready to apply?
If you would like to have an informal conversation about this role review the project brief and contact Julie Clayton, the CEO at Jigsaw Cumbria’s Children’s Hospice at julie.clayton@edenvalleyhospice.org by the 9th December 2025 (deadline to submit your proposal is the 12th December 2025).